STRUCTURE

Members of the National Network (Helpnet)

Steering Committee

  • (overlooks the function of the network)

National Hub

  • Advocating and representing the c4cnetwork at the country level
  • Helping to standardize processes within the c4cnetwork by developing national standards, processes and templates
  • Providing input into thec4cProof of Viability trials
  • Acting as the main point of contact in their country for sites and streamlining communications between sites and the c4cnetwork.
  • Facilitator to the communication between the network and stakeholders (academic institutions, pharma industry, patients/parents organizations, academics, etc)
  • Continuing to expand the National Network